Parents helping parents is what we are all about.
Need additional information or want to be contacted by
another parent in your area?
Contact our informational specialist and
parent advocate: mzgable at sbcglobal.net
We A.R.E. Cohen Syndrome
Parents helping parents is what we are all about.
Need additional information or want to be contacted by
another parent in your area?
Contact our informational specialist and
parent advocate: mzgable at sbcglobal.net
Wow! I can’t believe we have found you all! My name is Lisa Reynolds and my husband is Rick. We have been searching to an “answer” for all of my son’s various conditions for years..and one look at your webpage(and direction from a persistent pediatric opthamologist) have solved an 11 year old mystery. Our son Treyce, could be a twin of many of your posted pictures!!!! We are so thankful that you have shared your pics and stories. We are not alone!
Hi,
My name is Beth. My daughter is 13 and we are just learning all about this after not knowing for so long. It’s nice to see others that have the same story.